Lipedema Organizations
Fat Disorders Resource Society
- Website: https://www.fatdisorders.org/
- Youtube: https://www.youtube.com/@FatDisordersResourceSociety/featured
- Annual Conference held where clinicians, physicians, surgeons, lipedema warriors, and caregivers come together for community and to learn about the latest research.
- 2025 Conference: March 21-23 in Atlanta, Georgia. Virtual or in-personal attendance options
Lipedema Foundation
- Website: https://www.lipedema.org/
- Can order free brochures on lipedema to give to healthcare providers. There can be a wait so LF has also made available a PDF version available to download. If you would like printed brochures, The Supine Studio is also able to mail you some.
- Lots of resources, including information on clinical trials and lipedema specific research.
American Lipedema Association
- Website: https://americanlipedemaassociation.org/
- Nonprofit dedicated to helping lipedema patients advocate and spread awareness.
- This is a newer organization and will be creating resources as funding allows.
Lighthouse Lymphedema Network
- Website: https://lighthouselymphedema.org/home/
- Focuses primarily on lymphedema, but has a directory of Certified Lymphedema Therapists (CLT). CLTs are a great way to find someone working with lipedema.
International Lipoedema Association
- Website: https://theila.net/
- Focuses on information for healthcare providers, but has resources for patients. This takes more of an international, specially European approach to lipedema care.
Facebook Groups
- Liposuction Insurance Coverage (Sponsored by American Lipedema Association)
- SC Lipedema Group
- Upstate Monarchs–this group is for Upstate SC
- Advanced Lipedema Treatment Patient Guidance and Insurance
- Cover Lipedema: Insurance Coverage for Lipedema
- Southern Belle Support for Lipedema/Lymphedema/Adipose Tissue Disorders
- Lipedema Sisters USA
- Friends of Lipedema Sisters
- Lipedema Research Library-LRL
Lipedema Surgeons
This is not to suggest that these surgeons are good, bad, ect. These are just surgeons that we know are working with lipedema specifically. Please do your own extensive research before choosing a surgeon.
- Arizona: Dr. Karen Herbst of Total Lipedema Care in Beverly Hills, CA and Tucson, AZ
- California: Dr. David Amron of the Roxbury Institute in Beverly Hills, CA
- California: Dr. Shawn Moshrefi of the Roxbury Institute in Beverly Hills, CA
- California: Dr. Aria Vazirnia of the Roxbury Institute in Beverly Hills, CA
- California: Dr. Jamie S. Schwartz of Total Lipedema Care in Beverly Hills, CA
- California: Dr. Michael Schwartz of Pasadena Plastic Surgery in Pasadena, CA
- California: Dr. Justin West of Total Lipedema Care in Beverly Hills, CA
- California: Dr. John Larson of Larson Aesthetics in Newport Beach, CA
- Delaware: Dr. Nadiv Shapira of First State Med Spa in Wilmington, DE
- Florida: Dr. Jay W Granzow of Granzow Lymphedema & Lipedema Center in Jacksonville, FL.
- Not currently accepting new lipedema patients when I called in November 2024.
- Florida: Dr. Thomas Su of Artlipo Lipedema Surgery in Tampa, FL
- Georgia: Dr. Thomas Hagopian of Hagopian Plastic Surgery in Atlanta, GA
- Georgia: Dr. Marcia Byrd of the Lipedema Surgery Center in Atlanta, GA
- Illinois: Karol Gutowski of Karol A Gutowski in Glenview, IL
- Kentucky: Dr. Bernard Salameh of Salameh Plastic Surgery Center in Bowling Green, KY.
- Missisour: Dr. Thomas Wright of Lipedema Surgical Solutions in O-Fallon, MO
- New Jersey: Dr. Boris Volshteyn of Atlantic Surgical Associates in West Long Branch, NJ
- North Carolina: Dr. Jeffrey Ditesheim of Ditesheim Cosmetic Surgery in Charlotte, NC
- Washington: Dr. Daniel Hagerty of Premier Body and Laser in Spokane, WA